One of the wonderful things about being an artist is the creative community you can develop right in your own backyard. When a fellow creative told me about her granddaughter, Nola Carter, I knew I had to do something to help. Baby Nola has a rare, terminal disease called Sanfilippo Syndrome. Sanfilippo is a genetic disorder that causes progressive damage. Many of the children affected with this disease will not live beyond their teenage years. While some parents dream their daughters will become productive adults with adventurous hearts, Nola's parents dream that she will speak their names, run with other children, and live to be the woman she was created to be.
Because her disease is so rare, funding for research is slow in coming. Nola's parents have taken on the momentous task of raising funds for a clinical study of Sanfilippo Sydrome that will begin late in 2014. Nola is the youngest child ever to be diagnosed with Sanfilippo and her participation in these trials could be life altering.
I created this collage for Nola that will be auctioned at an upcoming fundraising event in November. Prints will also be available in the near future with all proceeds going to Team Nola. Learn more about how you can participate in Team Nola fundraising by liking Team Nola's Facebook page here.
Here are a few detailed views of the finished piece:
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